Intombazane yaseChechnya iyancomeka ngobuhle bayo obungavamile, kepha i-Albinism ayiyona kuphela into emhlukanisa nabanye.
Ubuso bale ntombazane yaseChechen eneminyaka engu-11 buyinto yobuciko. Igama lakhe ngu-Amina Ependieva (Амина Эпендиева). Utholakala enezimbili izimo zofuzo ezingavamile: I-Albinism lapho entula khona i-melanin pigment eyenza isikhumba nezinwele zakhe zibe mhlophe ngokweqile, ne-Heterochromia lapho amehlo ayo ehluke khona ngombala.
Mayelana no-Amina Ependieva:
U-Amina Ependieva wazalwa ngoDisemba 11, 2008, eGrozny, inhloko-dolobha yaseChechnya, eRussia. U-Amina kuthiwa uhlala lapho selokhu azalwa. Kodwa-ke, iningi labasebenzisi benethiwekhi baphinde bathi u-Amina ungowaseKurchaloy, idolobha elincane eChechnya. Uyaziwa kakhulu eChechnya ngobuhle bakhe obumangalisayo.
Izithombe zika-Amina Ependieva:
Izithombe zika-Amina Ependieva zaqala ukufakwa ngumthwebuli wezithombe u-Amina Arsakova ekhasini lakhe le-Instagram, ngaleyo ndlela watshela abalandeli bakhe ukuthi yena "Ukufuna ubuhle kuphinde kwaba nempumelelo."
Izithombe zathunyelwa ngoJanuwari 2020 ezasakazeka ngokushesha. Ngokwesilinganiso, okuthunyelwe kuka-Arsakova ku-Instagram kuthola ukuthandwa okungu-1k kepha lezi zithombe zika-Amina abelane ngazo zithole ukuthandwa okungaphezu kuka-10k namakhulu okuphawula.
Buka lokhu okuthunyelwe ku-Instagram
Ngenkathi abanye bethanda ukubukeka okumangalisayo kwale ntombazane, abanye bayangabaza ukuthi u-Amina wayesebenzisa ama-lens wokuxhumana emehlweni akhe, noma umthwebuli wezithombe wasebenzisa izinhlobo ezithile zemiphumela ekhethekile yezithombe ukumnika ukubukeka okungajwayelekile. Kodwa-ke, impilo yangempela u-Amina ibukeka iyefana nezithombe, futhi ubuhle bakhe bungokoqobo impela.
U-Amina Ependieva Ubutholile Kanjani Ubuhle Obungajwayelekile Kangaka?
Iqiniso ngukuthi u-Amina uzuze izakhi zofuzo ezimbili ngasikhathi sinye - i-Albinism neHeterochromia.
Ubu-Albino:
I-Albinism ukungabi bikho kwemibala ye-pigment melanin esikhunjeni, ezinweleni nase-iris yeso, eyenza umuntu abe nesikhumba esimhlophe nezinwele ezilula kakhulu. Amehlo ama-albino athanda ukuba luhlaza okwesibhakabhaka noma abe nombala obomvu noma we-mauve.
IHeterochromia:
IHeterochromia ibizwa ngokungajwayelekile lapho iris yeso langakwesokudla nangakwesobunxele lomuntu inemibala ngemibala ehlukene. Lokhu kungenxa yokuthi i-iris yeso elilodwa iqukethe i-melanin eningi. Ngakho iso elilodwa lingaba nsundu elinye libe luhlaza okwesibhakabhaka. IHeterochromia ayinamphumela embonweni womuntu, kepha yenza ukubukeka kwayo kuhluke ngempela.
Yize u-Amina Ependieva kukholakala ukuthi une-Albino engakhethi, abanye bachaza ukuthi kungenzeka ukuthi ubuye abe ne- “Type 1 Waardenburg Syndrome.”
Thayipha i-1 Waardenburg Syndrome:
I- “Type 1 Waardenburg Syndrome” ibonakala ngokungezwani kokuzwa kwezitho zemizwa, ukushoda kombala kwezinwele njengokukhiya okumhlophe kwezinwele ngaphambili enkabeni noma ukumpunga ngaphambi kwesikhathi, ukushoda kombala kwamehlo njenge amehlo anemibala ehlukene (i-heterochromia iridum ephelele), imibala eminingi esweni (imikhakha ye-heterochromia iridum) noma amehlo aluhlaza okwesibhakabhaka, amabala okukhishwa kwesikhumba kanye negebe elibanzi phakathi kwezingxenyeni zangaphakathi zamehlo ezibizwa nge-telecanthus, noma i-dystopia canthorum.
Ezinye izici zobuso ezihlotshaniswa nohlobo 1 zingabandakanya ibhuloho eliphakeme lamakhala, ithiphu lasekhaleni eliyisicaba, unibrow, imiphetho emincane yamakhala noma i-philtrum ebushelelezi.
Isiphetho:
Noma ngabe siyini isizathu, kusobala ukuthi u-Amina uthole ukuguquka kwezakhi zofuzo okungajwayelekile okwamenza wabukeka emangalisa ngempela. Manje le ntombazane isafunda esikoleni, kepha ngokuqinisekile sizozwa ngaye ngokuzayo, ngoba ama-ejensi wemfashini ngeke afune ukuphuthelwa ubuhle obunjalo.
