Ukuba umntu okrelekrele uzalwe ene-Down Syndrome, ngaba oko kwenza ukuba ubuchule bakhe bokuqonda bube buphakathi? Uxolo ukuba lo mbuzo ukhubekisa nabani na, asizimiselanga. Sinomdla nje wokwazi ukuba umntu ozelwe ene-Down Syndrome usenakho ngaxeshanye ukuba yingqondi, kwaye ukuba kunjalo, ukuba ezi meko zimbini ziyarhoxisa okanye hayi.
Ngokwenzululwazi yezonyango, akunakwenzeka ukuba umntu one-Down Syndrome abe krelekrele. Nangona i-'Down Syndrome' iyimeko yemfuza ebangela ukudodobala kodwa 'iGenius' ayiloguquko lwemfuzo. I-Genius ligama lentlalontle elisetyenziselwa ukubonisa umntu okrelekrele nophumeleleyo.
Nangona kunjalo, kule meko, akukho mntu ubonisa ngcono kunoPablo Pineda ukuba akukho nto ingenakwenzeka; owokuqala waseYurophu one-syndrome ephantsi owaphumelela kwiYunivesithi, ngoku ungumdlali owongwayo, utitshala kunye nesithethi esikhuthazayo.
Ibali likaPablo Pineda: Akukho nto ingenakwenzeka
UPablo Pineda ngumdlali waseSpain owafumana i-Concha de Plata Award kwi-2009 San Sebastián International Film Festival ngokusebenza kwakhe kwifilimu Yo, también. Kwifilimu, udlala indima yomfundi ophumelele eyunivesithi one-Down syndrome, efana kakhulu nobomi bakhe bokwenyani.
UPineda uhlala eMálaga yaye usebenze kwamasipala. Unediploma kwiTeaching kunye neBA kwiSayeloji yeMfundo. Wayengumfundi wokuqala one-Down syndrome eYurophu ukufumana isidanga saseyunivesithi. Kwixesha elizayo, ufuna ukwenza umsebenzi wakhe wokufundisa, endaweni yokwenza.
Ekufikeni kwakhe ebuyela eMálaga, uFrancisco de la Torre, usodolophu wesixeko, wamamkela ngembasa elithi “Shield of the City” egameni lebhunga lesixeko. Ngelo xesha wayephakamisa ifilimu yakhe kwaye efundisa ngokungabi namandla kunye nemfundo, njengoko ebesenza iminyaka emininzi.
UPineda ngoku usebenza ne-Adecco Foundation yaseSpain, enika iinkcazo-ntetho kwiinkomfa ngesicwangciso sokudityaniswa kwabasebenzi esiqhutywa sisiseko kunye naye. Kwi-2011 uPablo wathetha eColombia (Bogota, Medellin), ebonisa ukubandakanywa kwentlalo yabantu abakhubazekileyo. I-Pineda ikwasebenzisana neSiseko se-“Lo que de verdad importa”.
Kwenzeka Ntoni Kwi-IQ Yomntu Kwi-Down Syndrome?
Iingcali zengqondo zihlaziya uvavanyo rhoqo emva kweminyaka embalwa ukuze kugcinwe i-100 njenge-avareji ye-Intelligence Quotient (IQ). Uninzi lwabantu (malunga neepesenti ze-68) bane-IQ phakathi kwe-85 kunye ne-115. Kuphela iqhekeza elincinci labantu abane-IQ ephantsi kakhulu (ngaphantsi kwe-70) okanye i-IQ ephezulu kakhulu (ngaphezu kwe-130). Umyinge we-IQ eUnited States ngama-98.
I-Down Syndrome ibetha malunga namanqaku angama-50 kwi-IQ yomntu. Oku kuthetha ukuba ngaphandle kokuba loo mntu ebekrelekrele ngokugqithisileyo, loo mntu uya kuba nesiphene sobukrelekrele ― igama lale mihla, elichanekileyo lokudodobala kwengqondo. Nangona kunjalo, ukuba umntu unabazali abakrelekrele kakhulu, unokugqiba ukuba ne-IQ yomda (ngaphezu nje kwendawo yokusika ukukhubazeka kwengqondo).
Ukuze umntu one-Down abene-IQ enesiphiwo (ubuncinci li-130 – hayi eyona nto abantu abaninzi abanokuthi bayithathele ingqalelo yobukrelekrele), loo mntu bekuya kufuneka ukuba ekuqaleni abenesakhono sofuzo ukuze abe ne-IQ ukuya kwi-180 okanye njalo. I-IQ ye-180 iya kwenzeka ngokwethiyori ngaphantsi kwe-1 kubantu abayi-1,000,000. Kusenokwenzeka ukuba ayizange yenzeke kunye ne-Down's Syndrome.
UPablo Pineda yindoda enokuba ne-IQ ephezulu kunomntu oqhelekileyo one-Down syndrome, kodwa uya kujongana nocalucalulo olucacileyo okanye ubandlululo ngenxa yeempawu zomzimba ezinxulumene nale meko.
Amazwi okugqibela
Okokugqibela, abantu abaninzi abaqondi ukuba i-Down Syndrome inyanyaniswa neentlobo ezahlukeneyo zokukhubazeka ngokwasemzimbeni. Kwakungekudalanga apho abantu abaninzi abane-Down Syndrome basweleke ebuntwaneni ngenxa yeengxaki zonyango ― ke asizange sazi amandla abo apheleleyo.
Kule nkulungwane intsha yama-21, sikhula ngokukhawuleza okukhulu, kwaye sizama ukufumana isisombululo kuyo yonke ingxaki. Siyayazi indlela ekubuhlungu ngayo kubazali bomntwana oneDown Syndrome. Enoba ungubani na, nabani na usenokuzifumana ekwindawo yabo bazali badimazekileyo. Ke kufuneka sicinge kwakhona, kwaye kufuneka siyishiye inkolelo eqhelekileyo yokuba abo bantwana bahluphekayo abanakwenza nantoni na elungileyo eluntwini.
